Recordings from the 2022 Caregiver Conference
Lynden Legacy Caregiver Conference 2022 Wrap-Up
Wow! What an incredible event! So many happy caregiver faces greeted us both days!
Friday
Friday one of the highlights for me was the dedication of Lynette’s garden. This sacred space is just one of a few in the Intermountain Hospital gardens that has a recirculating fountain. The weather was a little chilly for the dedication and too bright for the quick tribute put together by her grandson Phoenix Hafen; so the dedication started indoors and moved outside to the garden and the specially created LL podium (thanks to J Andrews Design and Build) after the remarks of Tim Harrison, Director of Development @ Salt Lake Valley Hospitals, We were honored to have the grandkids turn on the fountain and many of the Blanch family in attendance including Lynette whom the garden and the foundation are named after. This was then followed up by an inspirational start to the conference by Dr G Marsden Blanch; foundation founder. He spoke of the many trials of caregivers who are living this “long goodbye” that is Alzheimer’s.
We were then pleased to hear the keynote speaker Dr Kara Dassel of the U of U (speaker recordings coming soon). Kara gives an overview of Alzheimer’s and then talks about embracing the present and preparing for the future. “Self care is not selfish”. She then gives an overview and explanation of the umbrella of dementia. Making hard decisions in preparation for the future is something we all need to think about. Healthcare planning and medical advanced directive or living will (if you are unable to make your own decisions).
We then broke out into the different rooms: Bell’s Canyon room was dedicated to the Self Care Suite all weekend. It was the perfect room for this as the glass doors lead out to Lynette’s garden and the healing of the sun. In the Twin Peaks room we were lucky to hear from Julia Bentley from the Alzheimer’s Association on the Early stages of Alzheimer’s. Little Cottonwood room was well attended as Dawn McFarland from Fifty Films was showing caregivers a thing or two about makeup, hair and grooming for their loved ones. I have had the experience of having Dawn prepare me for a photo shoot and she never fails to teach me something new.
Lunch was a delicious boxed sandwich provided by Apple Spice Junction (there were a few choices including gluten free *noted for next year). There was just enough time to use the bathroom, grab a drink, then sit down for the lunchtime Q and A with Rosemary Quatrale and 4 current, past and present caregivers. This was a welcomed hour filled with experiences, questions, answers, laughter and tears. You recognize that even though your experience may be different, there is beauty in everyone’s journey and we are ALL trying our best. THAT is beautiful. One thing I would like to see next year is a little more time for connection between caregivers. Perhaps in the form of breakouts before this Q and A panel. The experience many caregivers had while receiving a hand massage made me realize this need. We generally want to connect with others through our stories. One other thing that was brought up by those that provided the service in the Self Care Suite was that they really enjoyed giving the massages and hearing stories of care. This was really special and appreciated by both giver and receiver.
After lunch, Twin Peaks room had 2 more sessions with Middle and Late stages of Alz with Julia Bentley and Wendy Farr. If you had a chance to meet these ladies, you know, they are both fun and lovely. If you did not, I hope to have them back next year in some capacity. Meanwhile in the Little Cottonwood room Rosemary Quatrale (JFS) spoke to caregivers about Creative Engagement with loved ones. Rosemary really knows how caregivers feel. She thinks deeply about how all parties want to be treated and she is possibly one of the most thoughtful and caring people I know. We are so lucky to have worked closely with her during this conference.
Meanwhile, in the Little Cottonwood room, Troy Anderson spoke of Caregiver Grief. Sometimes this is a hard subject to speak on as we all know as caregivers this cycle continues and is not linear or straightforward. It is truly the long goodbye. If you are struggling with grief, Alz Association does have a caregiver hotline that may help. Knowing the stages and recognizing where you are at the moment can help too. Caring for yourself is very important and recognizing when you need help and support is crucial. Please reach out if you need support.
If you are wondering more about speakers, their background or where they can be reached; we will keep their bios available on our website. Feel free to reach out via email to us here at Lynden Legacy.
-Katie
Saturday
After everyone was able to rest and process all of the new and helpful information we gained Friday, we returned Saturday with renewed energy and another great lineup of presenters ready to share more tips, resources, experiences, self care options, and a bonus in depth presentation on prevention. Our continued goal was to support each attendee on their caregiving journey.
We started out with an informative general session with Dr Steven Fehleuer, Medical Director at Auberge Aspen Park, Lynette’s care facility. He discussed a clinical perspective on Alzheimer’s disease. With his vast background in geriatric medicine and his interest in long term care and dementia, Dr Fehleuer shared a wealth of information with our caregivers. Side note, he has a very dry and witty sense of humor so was very entertaining too.
Following the large group session, we were thrilled to have The Walk-Ons share their ethno-drama: Portrait of a Caregiver. Jackie Eaton, PhD, project lead and assistant professor and director of the GIP program, University of Utah, had previously partnered with Nancy Madsen, MS, National Family Caregiver Support Program to create this wonderful performance. Together they met with twenty-two individuals providing care to an older adult family member. The group’s conversations about caregiving experiences were recorded, analyzed and transcribed into a moving live performance. Our conference attendees seemed to relate to every word spoken. Emotions were raw and hearts were lifted as viewers gained a sense of validation in their struggles, as well as their triumphs. The Portrait of a Caregiver unified us as a group and helped each one of us realize that we’re not alone in this experience. Many of us laughed and cried throughout the performance.
After this, we broke out into small groups and learned from experts such as Kathy Nelson, from Salt Lake County Aging & Adult Services. She presented in the Twin Peaks room and came armed with numerous resources and programs to support caregivers. She generously donated the SWAG bags we handed out to attendees, filled with resources, gifts, and helpful items for caregivers. In the adjacent Little Cottonwood room, elder-care law attorney, Kent Snider, Snider Law, gave an excellent presentation titled: The Game of Life: Legal Aspects of Alzheimer’s. His discussion was standing room only, as so many need legal advice and tips when caring for someone with dementia.
We broke for another delicious lunch (Thank you, again, Apple Spice!), and an informative Q&A session with the amazing Rosemary of JFS. We, then, moved into two creative realms with talented speakers: Dorothy Huntsman, Dayhouse Design/Greg Bulaj, Omni-self Care, and Emily Christensen, Jewish Family Service, music therapist and director of Gleeful Choir. Dorothy and Greg presented on Healthy Dwellings for Dementia Caregivers. All in attendance were inspired to create soothing and healing environments in our homes for ourselves and our loved ones. Next door, Emily spoke about music in dementia care. Emily is the director of Crescendo Music Therapy and shared invaluable information about the amazing effect that music has on the care receiver as well as the caregiver.
For our final breakout session, we featured two wonderful presenters. Michele Carr, Alzheimer’s Assoc of Utah; spoke on the crucial topic of effective communication. Katie Cheesman, The Listening Ear Project; her topic was Capturing Loved Ones Life and Memories (check her out on Instagram if you want to be inspired and uplifted each day).
Finally, we were honored to have renowned surgeon, Dr Rosenberg, and his daughter, Chandler from Plant Based Utah join us to close our conference. What more important topic could there be for caregivers than prevention? Dr Rosenberg shed light on nutrition, decreasing stress, building better sleep habits and so much more. We learned about maximizing our vitality and ‘health span’. The Plant Based Utah booth was a big hit for attendees. They provided health scans, advice and information to help caregivers take better care of themselves. We hope to have Dr Rosenberg and his team again next year!
Speaking of next year, we have so many new ideas, thanks to the remarks listed on our post conference evaluation forms. Some guests wanted the option to request food conducive to their special diet, which we will follow up on next year for sure.
One great request shared is to incorporate sessions on solving specific practical caregiving problems: how to deal with difficult behavior, toileting, tips on bathing, oral care (“without getting bitten”), and how to redirect/de-stimulate aggression. We will start reaching out for amazing presenters who can provide information on just that and we are already getting excited about it!
Thank you to our sponsors, vendors and wonderful volunteers! I want to make sure to share a bit about the amazing vendors who took part in our conference. They were on the side lines providing valuable resources, tips and advice for our wonderful, selfless caregivers. Please feel free to reach out to them, they have a wealth of knowledge and experience they are more than happy to share. We couldn’t have asked for better vendors, presenters and attendees, and happily welcome all who would like to be involved back again next year!
-Suzette
YouTube channel and access to speaker presentations available SOON!!
VENDORS:
Alzheimer’s Association of Utah www.alz.org/utah
Raven Albertson rsalbertson@alz.org
801.265.1944
Jewish Family Service www.jfsutah.org
Rosemary Quatrale rosemary@jfsutah.org
801.232.2790
Salt Lake County Aging www.daas.utah.gov
Kathy Nelson KSNelson@slco.org
385.468.3281
Neighborhood House www.nhutah.org
Sarah Scott sarah@nhutah.org
801.363.4589 ex121
The Stern Team www.sternteam.com
Emily Brace embrace@sternteam.com
801.597.2243
Danville Support Services www.danfillesupports.com
Lynn Long l.long@danvilleservices.com
801.363.1521
Homecare & Hospice Assoc of Utah www.hhau.org
Margene Luke margene_luke@hotmail.com
801.661.1033
Senior Care Solutions. www.seniorcaresolutionsut.com
Alicia Smith alicia@seniorcaresolutions.com
801.205.3428
Premier Funeral Services. www.premierfuneral.com
Margene Luke margene_luke@hotmail.com
801.661.1033
Dayhouse Design www.dayhousestudio.com
Dorothy Huntsman. dorothy@dayhousestudio.com
801.891.9846
Abe’s Transportation blackruster87@gmail.com
Will & Angie
385.628.9239 or 801.833.4219
Plant Based Utah www.plantbasedutah.org
Chandler Rosenberg chandler@plantbasedutah.org
801.656.5602
iLUMI www.ilumismiles.com
Callie Steuer amazon@ilumismiles.com
617.290.3050
We Are Us. www.weareus.net
Scott Rose sroseaftd@gmail.com
Association of FTD. www.theaftd.org
Bonnie Shepherd bbshepherd@comcast.net
801.231.3442
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Marty Harger
Self Care Suite
DoTerra Essential Oils
Marty has a passion for exploring all paths to wellness. As a massage therapist and former wellness center owner, she now travels from her home in Heber City, Utah (USA) to teach about natural health approaches focused on the therapeutic use of doTERRA essential oils. She is a yoga practitioner and RYT-200 Yoga Instructor who co-authored the successful book, The EssentialYoga Program that brings oils into yoga workshops; creator of an online training program called the EssentialYoga Academy; and the owner of Essential Earth Explorations – a group travel company focused on essential oil production and sustainable living. Marty loves gathering people together for common purpose, and continues to organize community gatherings, fundraisers and networking groups to connect with others on the wellness path. She is a world traveler who finds great joy in helping others discover their true nature, through nature.
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Kara Dassel
Keynote Speaker
PhD, FAGHE, FGSA
Dr. Dassel is an associate professor and Interim Assistant Dean in the Gerontology Interdisciplinary Program in the College of Nursing at the University of Utah. Dassel earned her doctoral degree in Gerontology from the University of Kentucky. Following graduation, she completed a two-year post-doctoral fellowship in the Neuropsychology and Neuroimaging Laboratory at Barrow Neurological Institute in Phoenix, Arizona. She is a Fellow in the Gerontological Society of America, the Academy for Gerontology in Higher Education, and the Academy of Health Science Educators. Her research interests focus on Alzheimer’s disease and related dementias (ADRD) end-of-life care planning and caregiver health outcomes. With funding from the National Alzheimer’s Association, she and her research team are conducting an online advance care planning intervention for persons with ADRD and their family members. Dassel is a member of the editorial boards of The Gerontologist, Educational Gerontology, and the Journal of the Academy of Health Science Educators. She serves as the project lead of Community Education and Outreach for the Utah Geriatric Education Consortium. On a community level, Dassel has served on the professional advisory board of State Chapters of the Alzheimer’s Association since 2015.
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Steve Fehlauer
A Clinical Perspective On Alzheimer’s Disease and Dementia
M.D. Medical Director for Auberge Aspen Park
Born in Lander, Wyoming and raised in the shadow of the Wind River Mountains, Dr. Steve Fehlauer received his undergraduate education at Utah State University. While a student at USU he met his wife Roxanne when both were working as nurse’s aides at Sunshine Terrace nursing home. He attended the University of Utah Medical School where he received his medical degree. A residency in Internal Medicine at the University of Utah followed and Dr. Fehlauer was honored with the Outstanding Internal Medicine Resident Award. He pursued fellowship training in Geriatric Medicine at the University of Utah and moved from his fellowship to the faculty of the School of Medicine at the University of Utah. While on the faculty he held appointments as a VA GRECC Research Investigator and as an Assistant Professor in the Department of Medicine. Dr. Fehlauer conducted research on the use of computers in bedside medical practice and on means of detecting delirium from nursing clinical data. Following through on his interests in long-term care and dementia, Dr. Fehlauer left the University of Utah in 1995 to enter private practice as a Medical Director of nursing facilities and the attending physician for nursing facility residents. Dr. Fehlauer has served as the Corporate Medical Director for a regional nursing facility corporation and as a member of the Medical Advisory Board for a national nursing facility corporation. Dr. Fehlauer is currently Medical Director for Auberge Aspen Park. In 2003 Dr. Fehlauer was honored by the Utah Chapter of the Alzheimer’s Association with a Lifetime Achievement Award for his work for the Association and his patients with dementia. Dr. Fehlauer is married to Roxanne and has 4 children.
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Rosemary Quatrale
Music and the Brain
Jewish Family Service
Rosemary is the Older Adult Care Manager at Jewish Family Service. Rosemary grew up in the Detroit area and graduated from the University of Michigan with a bachelor’s degree in sociology. After raising three children she enrolled in graduate school at the University of Utah and earned a master’s degree in human development social policy with a graduate certificate in gerontology. Upon completion of a gerontology practicum with Jewish Family Service in 2015, she was hired by the agency to continue to provide services to older adults.
Rosemary oversees the SNAP assistance program, Music and Memory, Caregiver Support Groups, and Memory Café, and has developed new programs to meet the needs of caregivers during the time of COVID-19. Rosemary loves interacting directly with her clients and is passionate about finding creative ways to enhance the lives of people living with dementia.
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Katie Cheesman
Capturing Life and Memories
The Listening Ear Project
Katie is a former home health nurse who is passionate about sharing stories from the senior generation.
After caring for her grandfather while he had dementia and spending years working as a geriatric nurse, she learned firsthand how important it is to be a listening ear for seniors and share their wisdom with the world.
In 2015, Katie founded The Listening Ear Project, a video documenting business where she has interviewed and filmed over a hundred life stories of elderly people who have become dear friends. She created The Listening Ear Project as a way to be a listening ear for this generation and to share their incredible stories that deserve to be heard.
Katie lives in Lehi with her husband and two young children. She loves discovering new restaurants, exploring the mountains, taking ballet classes, and following the advice of her wise older friends, spending as much time as possible with her friends and family.
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Dawn McFarland
Make-up, Grooming, and Hair for Loved Ones
FiftyFilms
With 17 years of experience under her set-belt, Dawn McFarland has been a client, crew, and talent favorite. Specializing in helping women and men look their best in front of the camera, Dawn is also a producer and production designer, and has been accused by many of being •the most prepared person on set.•
Dawn has worked with celebrities and public figures for film, television, and commercial projects, and is a co-owner of Fiftyfilms, a Salt Lake City film production company. Dawn has a degree from BYU in Communication Studies. She is the mother of three exquisitely groomed children, loves to travel with her husband, Rick, and is a photographer with special interest in art and street photography.
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Emily Christensen
Gleeful Choir
Director Gleeful Choir
Emily is a board-certified music therapist and director of Crescendo Music Therapy. She completed her undergraduate degree in Music Therapy from Utah State University and her graduate degree from the University of Utah in Gerontology. Emily specializes in hospice, dementia and general elder care. Her company contracts with hospice agencies, nursing facilities, non-profits and private clients across Utah to provide music therapy services. Emily is the director of the Gleeful Choir, a chorus for dementia care partners, and is a board member of the Utah Creative Aging Coalition. Emily absolutely loves her clinical work, and is endlessly amazed at witnessing the astounding effects that music has on the quality of life of her clients.
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Tom Rosenberg
Keys to Prevention: How to Turn Back the Clock on Diseases of the Brain
M.D., Plant Based Utah
Dr. Tom Rosenberg grew up in Northern Utah and attended the University of Utah Medical School. Rosenberg co-founded the Fitness Institute at LDS Hospital in 1980, The Orthopedic Specialty Hospital (TOSH) in Salt Lake City in 1991, the Rosenberg Cooley Metcalf Clinic in Park City, Utah in 1998, the non-profit nutrient supplementation company, Nutriex in 1999 and the ProHealth Lab (now LiveWell). He is known for his innovations in knee surgery and his passion for preventive health.
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Kathy Nelson
Caregiver Support: Resources and Resilience
SLCo Aging and Adult Services
Kathy works at Salt Lake County Aging and Adult Services. She is the author of The Caregiver Academy, Caregiver Talking Points, the Managing Care Guide, and the Creating Joy Booklet. She is a family caregiver, coach, Master Trainer, and volunteer. She has over 20 years’ experience in providing care to others and works to provide family care management education and other events that promote creative caregiving.
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Dorothy Huntsman
Healthy Dwellings for Dementia Caregivers
Dayhouse Studio
Dorothy Day Huntsman is a founder and owner of Dayhouse Studio, an interior design firm using biophilic design to connect people with nature and self-care. Her multifaceted approach to creating sustainable and health-focused interiors integrates aesthetics, functionality, and cross-disciplinary research. She holds a degree in English from Columbia University.
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Grzegorz Bulaj
Healthy Dwellings for Dementia Caregivers
PhD, OMNI Self-care
Dr. Grzegorz Bulaj, PhD is the founder of OMNI Self-care, LLC, and an Associate Professor in the College of Pharmacy at the University of Utah. His cross-disciplinary work includes empowerment interventions and integration of diverse therapeutic modalities to improve treatment outcomes for chronic diseases. He holds a PhD degree in biochemistry from the University of Wroclaw, Poland.
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Michele Carr
Effective Communication
Alzheimer’s Association Utah Chapter
Michele spent her professional career as a sales and marketing executive in the tech industry. The past four years, she has been a volunteer for the Alzheimer’s Association working as a Community Educator and on the Walk to End Alzheimer’s. Michele studies continually to stay up to date on advancements in dementia research and care. She has read countless books and articles and attended a wide variety of training sessions to stay current on the progress in Alzheimer’s treatments. Like many of us, Michele has had first-hand experience caring for a family member and a dear friend battling this terrible disease. She is passionate about helping others through their journey of caregiving and living with Alzheimer’s.
Michele and her husband moved to Utah fifteen years ago. They enjoy hiking, skiing, golf, yoga and just being outside in this beautiful state. She holds degrees in French and Education and studied at Cal State Fullerton, Chapman University and Universite de Aix-en-Provence.
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Julia Bentley
Beginning, Middle and Late Stages of Alzheimer’s
Alzheimer’s Association Utah Chapter
Julia has served in a variety of roles for the Alzheimer’s Association of Utah since 2015 where she began as an intern and volunteer. She is currently a Program Manager, where her focus is on the delivery of care and support programs, and volunteer recruitment and management for Northern Utah. She holds a bachelor’s degree in Health Promotion and Education with an emphasis on emergency medical services and a master’s degree in gerontology from the University of Utah.
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Troy Anderson
Understanding and Acknowledging Caregiver Grief
PhD., MSW, MS, LCSW
Troy is an Associate Professor at the University of Utah in the College of Social Work. In this capacity he serves as the Executive Director of the WD Goodwill Initiatives on Aging. Dr. Andersen worked for 13 years as a dementia specialist clinical social worker at the Center for Alzheimer’s Care, Imaging and Research at the University of Utah School of Medicine. Dr. Andersen received his PhD in Social Work with an emphasis in developing proactive dementia care services for individuals in the early stages of the disease and other aging related topics. In addition to his graduate work in social work, Dr. Andersen also has an MS in Gerontology from the U of U, College of Nursing.
Outside of work, he lives to be outdoors. He has a second home near Capitol Reef and enjoys being there as much as possible. He is the proud father of 5 and 11 grandchildren.
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Wendy Farr
Beginning, Middle and Late Stages of Alzheimer’s
Alzheimer’s Association Utah Chapter
Wendy has been involved in the elder health care field for over 18 years. She began her career as a special education teacher and has worked with those having special needs since her teens. She and her husband, Joe, moved to Colorado Springs, Colorado in 1991 and just recently moved back to Utah! They opened a non-medical home care agency in 2004, where they began their journey into the senior care industry. She started as a volunteer with the Alzheimer’s Association over 16 years ago and has been teaching their community education classes. She has served on a variety of boards and committees over the years assisting the mission of providing support for caregivers and persons with life-limiting aging needs. She recently started as the Development Manager for Northern Utah for Cache Valley and Weber/Davis Counties. She's the mother of 4 children and proud grandma of Joston and DaniLynn! She's a wealth of information about community resources for individuals living with dementia and their loved one's.
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Kent Snider
The Game of Life: Legal Aspects of Alzheimer’s
JD, RCP, Snider Law Group
Kent Snider is a board-certified Respiratory Therapist and Elder Law attorney, with over 30 years of experience. This diverse background gives Mr. Snider the unique ability to understand and navigate a patient’s social, medical and legal needs. He has directed departments in Critical Care ICU’s. Skilled Nursing facilities, Home Care and Hospice.
In 2015 Mr. Snider Formed the Snider Law Group with the goal of helping patients and health care providers navigate complex legal/healthcare issues. Mr. Snider is always willing to meet pro bono (free) with healthcare providers, patients, and family members to answer questions regarding Estate Planning, Special Needs, Trusts, Asset Protection Trusts, Medicaid, Power of Attorney, Health Care Directives, Guardianships and Conservatorships.
Professionally Mr. Snider is a member of the Utah State Bar, the American Bar Association, and the American Inns of Court. He has served on two hospital boards and is a frequent guest lecturer at BYU, UVU and the University of Utah.
Kent and his wife Laurie are the proud parents of six children and five grandchildren.
Caregiver Conference
Where: Blanch Family Education Center, Alta View Hospital
When: May 20-21 2022
Our Sponsors
What to expect: The 2022 Inaugural Lynden Legacy Foundation Caregivers Conference is specifically designed to connect and support caregivers/family members who are caring for those with dementia illnesses. Interactive discussion, self-care suggestions, presentations from local experts, up-to-date resources and uplifting messages are interspersed into each day’s schedules.
You’ll get to experience:
Keynote Speaker Dr Kara Dassel (Gerontology Interdisciplinary Program at the U of U) Embracing the Present and Planning for the Future (Fri)
General Session Dr Fehlauer (Physician Auberge Memory Care) A Clinical Perspective On Alzheimer’s Disease and Dementia (Sat)
Marty Harger (DoTerra Essential Oils) shares aroma touch, hand massage, move-breathe-tune in sessions in our Self-Care Suite (available both days, all breakout sessions; sign up day of @ registration max 20/session)
Rosemary Quatraile (Older Care Adult Care Manager at Jewish Family Service) with Emily Christensen Music and the Brain
Dr Tom Rosenberg Keys to Prevention: How to Turn back the clock on Alzheimer’s Disease Epidemic (Sat)
Julia Bentley (Alzheimer’s Association of Utah) Living with Alzheimers; Early, Middle and Late Stages
Performance by the Walk-Ons: portraitofacaregiver.com – PORTRAIT OF A CAREGIVER: A live … (Sat)
Katie Cheesman (The Listening Ear Project) Capturing Loved Ones Life and Memories The Listening Ear Project (Sat)
Dawn McFarland (50 Films) Makeup, Hair and Grooming for Loved Ones (Fri)
Kathy Nelson (SLCo & Aging and Adult Services) Caregiver Support: Resources & Resilience (Sat)
Attorney Kent Snider (Snider Law Group) The Game of Life: Legal Aspects of Alzheimer’s (Sat)
Dorothy Huntsman & Dr Grzegorz Bulaj (Dayhouse Design) Creating Healthy Dwellings for Dementia Caregivers (Sat)
Troy Andersen (U of U) Caregiver Grief
Michele Carr (Alzheimer’s Association of Utah) Effective Communication
Q&A Panel Discussion: insightful perspectives from experienced caregivers
Light breakfast provided. Boxed lunches donated by Apple Spice Junction
Special SWAG bag of goodies just for you
Dedication of Lynette’s Garden (Fri only)
New alliances, friendships and support
Raffle; vouchers for respite care, gift baskets and so much more!
Registration opens at 8:00 am each day. Event runs from 9:00 am - 3:45 pm both Friday and Saturday
Cost $20 per day/person. Register through EventBrite
Conference questions? Call Katie Blanch 801 230-8902